Reply To: Pain/weakness (newbie)

guys thanks for responding so quickly.
Dawn’s mom – I had NC/emg done very early so neuro wants them repeated next week, and he should have results of anti-gangliosides blood tests…(this illness has a vocabulary all of it’s own 🙄 ) I do agree it feels like inflammatory pain, I have had no ivg, pp or steroids as yet, but I can see your thought process with cidp. To be honest I’d hate to be greedy, a single bout of GBS would be more than enough for me, lol.
GH – I think it is considered unusual to have asymetrical GBS but not impossible and hence can be even trickier to get diagnosed than symmetrical GBS.
Anybody got any tips on how to manage/relieve the joint pain till I get back to the neuro ?
Dixie