Reply To: not so much a question as reaching out.

November 1, 2012 at 12:31 pm

Synthia, You are so young to be stricken with this.  It is tough.  I am just adjusting finding out I have it.  I have a mantra.  It isn’t what happens to you that is important, it’s how you react to it.  At this point, my reaction is one of the few things I have control over.  And I am used to having a lot more control!!   This seems to me like a huge test!  It does suck.  You, no one, deserves it.  Just know that you aren’t alone in this and do everything you can to fight it. I can’t offer much advice as I am so new to it all.  But, remember you aren’t alone.  I actually had a conversation with a relative’s psychologist on another matter.   When I mentioned to her  what I am going through, she suggested I make an appointment.  I told her I would think about it.  It won’t help my CIDP, but it could help me cope.  If I get to that point, I just might call her.   There is no shame, only strength, in asking for help.  Ev