Reply To: not so much a question as reaching out.
Hi…I am 12 years post GBS and I have finally accepted the fact that my life will never be the same again! I now have a NEW normal! Yes, it is VERY frustrating to get fatigued so easily but I’m also still alive to be able to complain about it!! Each day is a new adventure and I know when I can go, go, go and when I have to stay home and rest. It is not always fun but each day alive is better than the alternative, right?! Just listen to your body and know your parameters. You won’t be climbing any mountains or even be able to spend an entire day at DisneyWorld without getting tired but you can live a full life within the confines of what your body will allow. If you harbor on the negative aspects of what GBS has done versus trying to achieve what you CAN do, life will not be very much fun. I always look for the pluses in life. Sometimes it is very hard but there is always something…always! Take care!