Reply To: Newly diagnosed

October 30, 2012 at 5:15 pm

As for whether the IvIg is effective, the neurologist will be checking for progrssing weakness after the treatments. When I continued to decline after the first round, I was given a second round. This was about ten days or so after the first round. I could have had plasma exchange then, but I was reluctant and a second round sometimes helps when the first is insufficient. In my case, it did not. I continued to deteriorate, and crashed completely about ten days after my second round of IvIg was completed. At this point, plasma exchange was the only option, and I no longer cared what they did to me.

This sounds terrible, but keep in mind that people recover from this disease, even if they have been completely paralyzed below the neck, as I was.