Reply To: Newly Diagnosed

My appointment with the doctor at the U of M is next Wednesday. I’m really looking forward to what he has to say. I feel like my life is in limbo now. I did get copies of my records from Mayo for the doctor at the U of M and it was interesting reading.

Here’s a snippet from the EMG & NCS:

15-Oct-2013 Electromyography Final Report
CLINICAL INTERPRETATION: There is electrophysiological evidence of 1) a disorder of the motor neurons or
their axons involving the C5-T1 segments, 2) chronic right L4-L5 radiculopathies without any ongoing denervation, 3) length-dependent sensorimotor peripheral neuropathy, 4) moderate right median neuropathy at the wrist. There is no definite electrophysiological evidence of CIDP.

The last sentence was very interesting. I’ve also had an MRI of the brachial plexus with and without contrast that was normal. The only thing pointing to CIDP is the elevated protein level found from the spinal tap.

I’m still working but it is slowly becoming more difficult so I’m hoping to be able to get started on infusions soon. I’ve done all the paperwork and gotten my FMLA approved. It’s finally less than a week till my appointment.