Reply To: Newly Diagnosed

November 2, 2013 at 4:12 am

I’d make as many doctor appointments as necessary till I got in to see one that could authorize the IVIG. Don’t play around with any doc who isn’t sure what you have and tosses out ALS like it’s nothing. There’s a big difference between CIDP and ALS. Majority of insurance companies want a bonified diagnosis (testing, blood work, NCT) and you need a good neurologist to give you this.

I love having my infusions at home. If at first you feel the need to have them done at a clinic than try that route.