Reply To: Newly diagnosed
Echoing what GGH said the lumbar puncture is nothing to fear – make sure you get it done at a hospital under fluoroscope(sp?) – I had no complications. As far as my IVIG treatments I am in going for my 4th round of 5 next week. I have been told by the infusion nurses that if IVIG is going to work you can see signs around the 3rd or 4 th loading regimen. So far I have not seen that improvement – but no worse episodes. Have leg tingling/numbness, drop left foot, fatigue easily, trouble with steps and have to watch my walking to avoid tripping and falling. Can only walk 50-100 yards and have to rest/sit down. You know that feeling I am sure. I have a desk job 8-5 so getting by but if this IVIG doesn’t help I may suggest to my neuro the plasma try as GH talks about. Hope this helps.