Reply To: New To This In Huntsville, AL

November 16, 2013 at 1:37 pm

A general practitioner is not likely to be able to diagnose a neuropathy correctly, so should be referring such cases to a neurologist without prejudging it. The LP and nerve conduction support the diagnosis of GBS or CIDP, with the two distinguished by the pattern of presentation of symptoms.

IvIg is the usual primary treatment. It starts with a “loading dose,” which is usually administered daily over five days. Then a periodic regimen of maintenance doses is established, the frequency determined by need. There is a lot of variation in the disorder and in response to treatment. Supporting treatments are steroids and other drugs. An alternative primary treatment is plasma exchange. I had this because IvIg was ineffective for me.

“Lightning bolt” pain is common during the active phase, usually in the legs. This should improve as the disorder is controlled.