Reply To: New Reluctant CIDP Member/Relapse?

May 1, 2013 at 3:46 pm

Another Update, discharged from Swedish 4/11/13 & went home. A few adjustments around the home and everything seemed to be fine up until two days ago when I started to get tingling in my left hand and forearm. Panic thoughts of another relapse far away from Swedish. Started calling, first my local GP, who suggested calling the docs at Swedish which I did who informed me that technically I was not an Outpatient yet and I should call my local GP. Which I did (again) qand by this time I was almost in full panic mode. At least my GP suggested that I kick up my oral doseage of Predisone from 50mg to 100mg which I did. Seems to have helped a bit because the tingling left my left forearm but still is in my hands, left more than right. So far, leg strength seems to be holding and I can still sit to stand in my walker so I can be mobile in the house.

I have been building doseage on the Immuran/Azothioprine from 50mg to 100mg. Scheduled to go to 150mg 5/8/13 and another 2 weeks after that to 200mg daily. Then start tapering off the Predisone. This stuff scares the daylights out of me!!!! Any thoughts on how to deal with the Health Care Monolith???