Reply To: New here. Recently diagnosed with CIDP; getting IVIG.

May 24, 2013 at 3:18 pm

bny806, that’s a wild mix of bad and good news! On the bad side, the idea of getting aseptic meningitis again really bums me out. What misery! On the other hand, it’s good to see you’re doing better and seem to have found a way to keep the AM at bay. I’m hoping I can adapt the way you did.

In my case they’re running it in at 150. The nurses check on me frequently, and always say that if I get a headache they’ll slow it down. When I go in on Tuesday I’ll ask them not to go above 100, and we’ll see if that makes a difference.

It’s been a strange week. I still feel like my head is wrapped in a tight invisible helmet, although it doesn’t keep me from functioning. (I need to work.) I always feel like I’m on a cough-syrup buzz, even though I’m not taking anything stronger than Advil and Tylenol.

Last night I had a small crash at the end of the day. Zero energy and barely and appetite at dinner. Felt really bummed out and dizzy. After my tiny dinner I took a multivitamin and a vitamin D pill. An hour later I was peeing like a race horse (three times within an hour). After than I felt a lot better. Fell asleep without any sleep aids, but woke up in the middle of the night energized, in a great mood, and hungry! Whaaaat?

Today is about the same as it’s been all week. Bit dizzy. Bit of a clamp on the head. Not as bad as yesterday though…