Reply To: New here. Recently diagnosed with CIDP; getting IVIG.
byn806, I reported the rash to my neurologist and she changed my IVIG from Privigen to Gamunex. The itch and rash went away after about a week. I still get some itching on my legs, but I was getting that before I started IVIG. For large areas of itchiness I find Gold Bond medicated cream helps. For specific hives, over-the-counter cortisone cream really helps.
Otherwise, I’m happy to report that things have been going well. I occasionally fall into a funk where I have a lot of aches and “fog” for couple of weeks, but then I come out of it and go the other way, where I feel great for weeks at a time. Currently in a “great” phase. 🙂
In terms of CIDP symptoms, I think the damage to my feet is permanent, but when I’m at the high- or even mid-point of my roller-coaster ride of symptoms it’s hardly noticeable. Fingers are still a bit numb, but it’s tolerable. The best improvement seems to be my gait (walking). I no longer feel like a tottery 90-year old when I walk; for the most part it’s completely normal.
I realize that I’ll most likely never go back to “normal” so it’s a matter of creating a new normal. If I could lock down how I’ve been for the past month and declare that to be “normal” and permanent, then I’d be happy.