Reply To: New Development, Need Advice

June 21, 2012 at 5:54 pm

Do you have one infusion every 5 weeks?? To me that is not bad at all. I was having 6 a month and recently have dropped to once a week. We are all the difference with how we do with IVIG and other CIDP treatments.

It’s good your neuro is concerned about you and your current treatment of IVIG (after all you have in your 30’s). How many CIDP patients does your neurp treat? I would check your insurance max coverage and maybe have another neuro’s opinion about other options (couldn’t hurt). I could not take steroids and the Methotrexate pills didn’t work for me either. Steroids are not meant to be used long term either because of the problems they can cause.

I think you should be congratulated with working full time and being a mom”’ Let us know what you decide to do.