Reply To: New Development, Need Advice

June 21, 2012 at 7:20 pm

I received infusions every other week for two years before my neurologist stopped the infusions in January of this year to see how I would do. I know of people receiving infusions for years and years. If the IVIG works for you, then barring any other issues, I would continue with the infusions if it were me. I was also lucky in that IVIG worked so well for me. I certainly would avoid steroids, immunosuppressants, and any other drugs unless absolutely necessary — especially if the IVIG is effective.