Reply To: Nerve Regeneration Protocol

October 12, 2013 at 3:32 am

CIDP damages the Myelin sheath surrounding the nerve fibers. Myelin is like the insulation on electrical wire and without it; the nerve signals short out and don’t reach their destination. Myelin can grow back at the rate of 1 millimeter a day, which is only 0.0032808 ft, this is extremely slow but there has been little that can be done to speed up the process, except for the very expensive and experimental stem cell transplant treatment.

I think you may be on the wrong track trying to find some non-scientific cure that rebuilds damaged Myelin. Many very bright scientists have been working on the problem for years and have been running clinical trials to test different treatment approaches.

I’m not sure anyone on this forum would follow recommendations from a nurse who doesn’t seem to have a scientific grasp of CIDP in the first place. According to your post, it seems you don’t even know if you have CIDP and have no confirmation from a specialist, nor have you sought any of the proven treatments for CIDP.

B12 and Alpha Lipoic Acid may be some of the only non-prescription supplements that have a fair chance of helping some CIDP sufferers. Newer prescription drugs like Dalfampridine and time-proven treatments like IVIG or Plasmapheresis are much more likely to help treat CIDP than the supplements you suggest.

Posting your experimental home remedies under “success stories” is misleading to forum readers in my opinion.