Reply To: nerve healing process
Unlike your brother, my disease course was a moderately quick decline to a point, and then a very rapid decline after that. Treatment, though, would arrest the rapid decline and promptly return me to nearly full function in a week or so. I am considerably better than I was five years ago. That I am significantly better now, though, does not mean that my treatments necessarily caused a reversal of the disease, just that they kept the effects from being more severe and long lasting. My neurologist and I believe that I suffered very little damage to the axons and nerve bodies and that my myelin, while not perfect, is in decent condition. Based on your descriptions, I think your brother may have also suffered from axonal damage. His recover will necessarily be slower, just because axons regenerate more slowly than myelin. I am afraid, therefore, that my experience and your brother’s are so different that what worked for me may not work for him. Still, nothing ventured, nothing gained.
I found PE to be very helpful, even essential, in maintaining function and almost benign in administration. I had a central venous access catheter, so the process of the PE itself was painless. It was time consuming when I was getting it several times a week, but because I had such good response, it was well worth it. Maintaining the catheter was essential, and I did so with vigilance.
Godspeed in finding an effective treatment