Reply To: Need tips on recovery

October 23, 2012 at 2:35 pm

Hi Daveoh,

I’m interested to hear a little more on your recovery. My brother was admitted in December 2011 as well and has had a slow progression. AT the beginning his grip strength was measuring 0.5 and 0.7 lbs/sqinch and is currently at 6 and 11 almost 10 months later. He was never paralysed, but had lost significant weight. He has put back most of the weight due to heavy dose of prednisone and 35 plasma treatments. He is mobile and can walk around, but can’t stand still. His core strength is good, but wrist and hands are extremely weak. Did you experience the same weakness and had progression where you could function without aid? I know we are really only 6-8 months into recovery, but his case seems to mirror yours and would like to hear if you had similar transitions.

Anything would help to guide us.