Reply To: need spome advice on this cidp rollercoaster ride??

February 18, 2012 at 4:12 am

Humm…. Gosh, I don’t have any advice to offer, I wish I did!! Are the effects of PE not cummulative, like they can be with IVIG? I don’t know how long PE “should” take to work… but it sounds like if you are worsening in any way that SOMETHING should be done! I wouldn’t think that IVIG could cause any problems.. were you ever on IVIG + immunosuppresants? Immuran or any of those? That’s one of the options my neuro has talked about being a possibility someday.. I hope someone can give you some more info!! I’ll be sending positive thoughts your way!