Reply To: need spome advice on this cidp rollercoaster ride??
Thanks pattyo—YES !!! a cure for all would be great—I’m praying for it. I have not cancelled the ivig and will most likely get it next week. My only concern regarding the IVIG is Im not sure whether or not it is doing anything for me, and have been very patient with it, at first every 12 weeks, then weekly for 16 weeks. Its been practically my only treatment since cidp—
-My Dr is suppose to talk to Dr Dyck @ Mayo about me before my appt in March. hopefully he will have some helpful suggestions and she will have some options for me.
Thanks for responding 🙂 I really miss our old forum, the format of it was more user friendly, not so many people seem to be using this new one. hopefully it will pick up–ther is so much to learn from others experiences and imput.