Reply To: need spome advice on this cidp rollercoaster ride??
The solution is SCT. I tried IV-IG – Prednisone – Cytoxin – all of it was like blowing against a boulder. Whatever it did – I had a hard time distinguishing if it was real or in my mind. Then I did SCT – and that is the no shit fix. Recovered all of my function within weeks. I have some lingering foot pain – and I spread my toes as much as I used to be able to do. But everything else is back to 100%. I move the same amount of weight in the gym as I did before. The best advice I can give anyone with CIDP – is go get a SCT – and do it as soon as you can. The biggest factor in how much you recover is how long you have had the illness. I became symptomatic on July 1st 2009 – and had my xplant on March 4th 2010 – 7 months. Looking back from 3 years later – CIDP seems like a bad dream.