Reply To: need spome advice on this cidp rollercoaster ride??
I am new to this forum and from the UK, so things may be different over here, but I was diagnosed in June 2011, had a relapse in January 2012 and am on steroids, which seem to be having a positive effect for me, but the side effects are nasty! Due to the “fun” of even getting diagnosed and the variability of the symptoms/treatments, I have written a blog on the matter (just to try and help others): mycidp.blogspot.com
I will update this as my diary regularly, as the one thing I have learnt is the earlier the diagnosis, the more likely that the treatments are effective.