Reply To: need spome advice on this cidp rollercoaster ride??

March 3, 2012 at 11:09 pm

Lori, I’m sorry you are having so much difficulty finding the best treatment. Unfortunately, there is a lot of variability in how various cases respond to different treatments. I had IvIg, PE, Prednisone, and Mycophenolate Mofetil, the last which I am still on. The IvIg didn’t do anything for me except possibly stop the progression of weakness for a short time. It is not unusual to have to try various treatments to try to arrive at the best course.

Five treatments of PE is typical, but I was fortunate to get nine. My opinion is that more is better, although one is never able to generalize from individual cases. I might have recovered with fewer.