Reply To: Mystery – is it CIDP or not??

July 2, 2013 at 12:41 pm

Ok, but you say “transient.” So your strength returns? On what time scale?

But Emilys_mom is right, you need additional tests and possibly another doctor to make the diagnosis. The spinal fluid (CSF) test is a usual one for GBS and CIDP, but it may be too early for that. It also can be negative for CIDP if taken too early.

If your doctors can’t get the diagnosis nailed down, at somepoint it would be advisable to go to a large medical center better able to diagnose it. There are some of these designated as “Centers of Excellence” for treatment of GBS and CIDP. In what part of the US (or elsewhere) are you?