Reply To: My story

May 29, 2012 at 2:52 am

Autonomic dysfunction is a difficult field for most of the neurologist I have seen and do not see it very often nor know a good plan of action or treatment for it . Hypotension is rough to deal with keep fluid and salt intake high and stress way low. No caffeine or stimulants even diet soda caff free makes me feel bit wacked out. The twitching is annoying but u seem to get used to as time goes by. Been a rough 10 months for myself I am still looking for best treatment and course of action and so are the doctors. John Hopkins is good but lack a real autonomic specialist ….. If your motor function is your greatest concern JFK or nycp should be able to get answers. I have eased with doctors over past two months hoping time and good diet rest would prevail …. I can’t say much has changed and feel like there are still on going issues. If you have any questions feel free to ask