Reply To: My story

Wish I could be more helpful but here’s my current situation. Had the ivig one treatment, and skin biopsy back in December at Columbia Presbyterian under dr. Daras. The man may be good in his field but common decency he and his office lack. Pretty much you will get the runaround from majority of doctors you see has been my experience so far. The jfk neuroscience center is where I’m at now under dr. Rosenberg he is good but tough to get in to see him. At this point I’ve had 4 AFT tests done all very abnormal but skin biopsy was negative for inflammation. Had rotary chair and vemp testing done also abnormal, they call it vestibular testing. Mri of brain is normal, so a recommendation of vestibular rehab was given. Was on mestanon was useless to me. I wrote down current symptoms in my phone other day so when he calls to review a sleep study I can tell him recent symptoms. Here’s my list