Reply To: My story
March 3, 2012 at 4:29 pm
Nick,
A 5 day treatment may not be enough. It wasn’t even close for me. But both ivig and extremely high doses of methlprednisone for the first 12 weeks made a difference. It took time for me to notice the improvements but it was within a month. There’s someone else in the forum w/ gi issues. Pelzitier86. Fabry Disease was something her doc was looking into. They have a website, a good one being fabrycommunity.com. I know that your searching for answers. She is too. As am I. Keep intouch.
Susan
PS there’s a list of the best gbs/cidp doctors on this website maybe one is near you