Reply To: My son is 9 and got diagnosed last month
So sorry to hear about your son, I do understand. On a good note, the fact that your son relapsed after IVIG is proof that it does work for him. That is half the battle, not everyone responds and some people get the wrong diagnosis, so you are ahead of the game. Now you have to find a schedule and dosage amount that works for your son. If possible, could we communicate via email or phone? I would love to give you any info we have so that you don’t have to go through the mistakes that we did. I will check back later today.