Reply To: my rituxin experience
4 1/2 months post rituxin. walking has felt a little easier, not significant– but better. still not able to walk on heels or toes.
definitely have not got any worse and have been 5 months without ivig. less fatigue, now have pain in nerves that were usually numb, not bad pain, no need for any pain relievers, sort of pains letting me know those nerves are still there. I prefer the pain over the numbness.
last lab tests showed b cell depletion, cd 19 and 20 depleted—-which i am told is good. My nerve damage is more axonal than dyminilating. axons heal at an extremely slow rate. Hoping this rituxin is going to halt the attack on my nerves, but right now I am still in the “wait and see” phase which we cidpers are all too familiar with.
still in appeal process with my insurance company, hoping it will be cleared up before next doseage is due.