Reply To: my rituxin experience

July 11, 2012 at 3:35 am

thanks everyone again for the well wishes 🙂 a little over 3 weeks since my second 1000mg rituxin infusion (june 14th) feeling pretty good. energy definitely better. I do have periods where i think the numbness is worse, then after a few days of that i feel better???
trying not to base too much on the sensory changes and really focus on strength. The good thing is i am definitely not worse and have been almost two months with no ivig.
as for my insurance dilemma– I asked my Dr to call the insurance co and give her reason for choosing rituxin (hopefully the fact that i have a confirmed abnormal antibody will help)
It is still a little early to tell how the rituxin is going to work—every site i have read on it says 3 months to get full benefit. of coarse they are referring to other auto-immune diseases since there is not a lot of info out there on rituxin specifically for cidp . but it is a good baseline to get an idea of how long it might take.