Reply To: My Journey

Hello Emilys_mom, thanks for your response. I recently spoke with a family member who’s a doctor, and she worked at the Mayo clinic as well, and she recommends me to definitely see a Rheumatologist. I wish she was in NJ where I live, but she’s in D.C. She said the symptoms I described to her reflect a rheumatological disorder as well. When I was hospitalized, she came all the way from D.C. and immediately knew I had GBS, because she treated so many patients with it at the Mayo Clinic. She could offer advice to the docs, but couldn’t treat me as her own patient b/c she was out of jurisdiction. When I had the MRIs done, they did with and without contrast, and that was normal. I will check out the Centers of Excellence as well. Thanks so much!!!

Hi Goodney, thank you for your recommendation. I will check him out!!