Reply To: Mitochondria

January 3, 2013 at 7:37 am

Have had two nerve tests and both showed  an absence of f waves and some other  because current neuro said it was an odd combination. Have to wait 6 weeks for test results. Current neuro wants to wait for results because if they do show mitochondria issues he will start me on a vitamin cocktail tail and n q10. He said  that even though he felt i had cidp because I could still walk IVIG would be like using a shotgun to get rid of slugs. I have to be honest and say it is all very frustrating and i really miss my previously very active lifestyle . the other thing mentioned that you might find interesting was his opinion that there is a small gap between peripheral nerves and the central nervous system and that the inflammation had slipped through this gab causing the weird head sensations. Again many thanks for your responses and wish you all the best.