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May 13, 2011 at 3:17 pm

Thanks for all the messages. It is very heart warming to have such support out there from people we don’t know. Husband has no reflexes in knees or feet. His pain/symptoms are bi-lateral. 5 days of IVIG seemed to stop the progression of the numbness/needle-like pain throughout his body, but the pain in his legs, arms and back is still pretty strong. They had him on 3600mg Gabapentin, but when his EMG tested negative the doctor told him to stop taking it. His pain level did not change once he stopped taking this and some days feels more severe. He is almost finished with his steriods and scared because the pain is still there. Interesting…his fingers were a light purple yesterday and are still numb and tingly. We will keep looking for a good doctor and answers!!!