Reply To: lumbar puncture / CSF results

It’s best to leave judgments about how to proceed to the neurologist, in my opinion, so I can’t relate to “get him to order …”. Elevated protein is an indicator of GBS or CIDP, as I was told by my neurologist, who had diagnosed GBS. After my spinal fluid test I merely asked him whether the test result was consistent with the diagnosis. He said it was. That was good enough for me. Leave medicone to medical doctors, I say.

My diagnosis was later changed to CIDP based on the progression of my symptoms and on NCV and EMG tests. I never heard of the “blood-CSF barrier.”