Reply To: Looking for answers- doctors making me feel like I am crazy

June 5, 2012 at 4:21 pm

I don’t see why you wrote “Has anyone else’s doctor been adamantly opposed to perform a spinal tap or prescribe IVIG treatments?”, since you wrote just above that the lumbar puncture was being considered, should it become necessary. A premature CSF test could be inconclusive for CIDP, in which case it would be wasteful. Your neurologist is the best judge of when a CSF test is needed.

As for IvIg, it is a scarce resource as well as an expensive, therefore it is rationed. It is normally administered only when the diagnosis supports its use, so as not to waste it treating conditions for which it is known to be unhelpful. The first thing is to nail down the diagnosis.