Reply To: long time no see

March 30, 2012 at 2:41 am

wow! thanks for the update!!! I have heard about porphyria.. do you get a lot of pain, or the purple urine?? (if you don’t mind me asking!:) Do you still have to do PE or is there an easier/less invasive treatment? Glad to hear you found an answer, and I hope you are doing well! thanks again for updating us!!!