Reply To: Joint Pains

My thought is if the symptoms are still progressing then the current treatment is not working. Even if something worked for a while doesn’t mean it will work forever, or that you can’t relapse.
The immune system is complicated, affected by everything from stress to sickness. What works for one may or may not work for another.
If I’ve learned anything since being diagnosed almost three years ago (3 years in June) it’s to be more in charge of myself medically. Keep yourself informed of what’s available for us for the cidp and don’t be afraid to speak up for yourself and ask for the next step if your current treatment isn’t working. I feel I waited too long for the ivig to work for me, 2 1/2 years before trying PE and am just now in the process of trying an immunosuppressant. Be pushy, don’t feel like you’re offending the Dr by making suggestions or questioning your current treatment if it isn’t effective. It is our life, we only get one—-once we walk out of that Dr’s office they are on to the next patient. So call, be persistant, don’t sit back and wait, especially if you are getting worse.