Reply To: IVIG/treatment and symptoms

March 13, 2012 at 1:31 pm

The fanny pack is for iv infussion. It is mobile. The only thing different is that the ivig has to be pooled into a bag as opposed to getting it direclty from the bottles. My one friend even goes to the mall with her nurse!

Regarding the headaches, have you ever tried switching brands? You obviously already infuse slowly, so that is good. Honestly, the pre-meds never even put a dent in the headaches for us. We switched brands and now do it for one day every two weeks instead of 2 days in a row. While on loads, we did it for 4 days in a row, that was awful. Now the headache is for one day after infussions with the nausea, vommitting. Zofran is another drug that helps with the nausea if that is an issue for you.