Reply To: IVIG/treatment and symptoms

March 9, 2012 at 2:15 am

Glad to hear your doing well!! Ahhh the gym sounds soooo nice!!! I need to cancel my membership! I don’t foresee being able to do anything like that for a while – since basically every single muscle in my body is affected.. If I overdue it, which sadly now can be something simple, but im wiped out for a while afterwards! Though not nearly as bad as I was before that 2nd IVIG! I was SOOO excited about getting my body back after having my son (who turns one tomorrow!!!) I had been pregnant back to back to back gosh, 7 times, so it was finally time for me to “take control” of my body haha.. I’m thin, but not firm! ๐Ÿ™‚

I agree – I think live chat would be great!!!! I still can’t believe we can’t private message!! It’s crazy how IVIG can just abolish the fatique! After that 2nd dose kicked in, it really made me realize just how sick I had been for how long, I dont’ know how I functioned!! SOO thankful IVIG is working, though I am 16 days out and think it’s starting to wear off a bit.. I think I need to change up the frequency or something! I’ll talk to my dr and see waht we can do! Do you take lyrica or any other meds for the paresthesais?? I’m not big on medications, but after almost 3 months of not sleeping- due to the paresthesias waking me up CONSTANTLY.. and wanting to crawl out of my skin, It helps me SOOOOOOO Much, I just can’t be sane without it now! ๐Ÿ™‚