Reply To: IVIG/treatment and symptoms

March 1, 2012 at 11:24 pm

I know you have been through a lot and more testing is definitely not fun. But….you are so young and where you havent had this very long—- with an aggressive treatment plan maybe you can get back close to where you were. Plus you haven’t got an actual diagnosis yet, have you? It just seems you have a lot of variants with the vision involvement, autonomic, and etc. I think of how stressed i am with just my feet and lower leg involvment and can’t imagine what you are going through with all you are dealing with.
It is sad about your classmate—-but really take care of yourself, don’t even think about settling on a wheelchair!!! if i’ve learned anything with this disease it is that we have to advocate for ourselves…..As soon as we walk out of the Drs door they have forgotten about us and our concerns and are onto the next patient. so be pushy if you need to be.