Reply To: Ivig?

October 25, 2013 at 6:37 am

Hi WBowyer,
I am so glad that I have found you.. I have been searching for the answers in a long time. My father has been diagnosed with GBS – Miller Fisher Variant Plus since August 10, 2013. He was given two courses of IVIG with one week distance between the two courses. On Sept 3, He suddenly had a cardiac arrest and was in a comma (no concience + eyes are closed + no movement) until Sept 28. Then, he started to open his eyes, moved his legs and right arm but I can’t say that he’s consious.
The Neurologist said that he can become forever in a vegetative state because the comma lasted for 25 days. But when I read your stories and assumed that you typed it yourself, I am thinking differently possitive.
Can you please share more about your stories when you were in a comma. What did you feel, and how did you recover stage by stage. Did you have an additional batch of IVIG? How’s your heart rate and temperature?
Please drop me an email at if you have time.. I will be very gladly to chat with you..
Please help me as my Father is ALL I have…

Thank you very much, Anne Darmawan