Reply To: IVIG dosage

Anonymous
May 9, 2012 at 3:42 am

Thank you for all your input. I will be seeing my neuro MD the beginning of June. That’s when I can make my decision on whether to go 54 grams every 3 week. He says the decision is up to me. How am I suppose to know? He’s the doctor, not me!
It takes me 2 1/2 hours to infuse 25 grams, so I figure it’ll take me more than 5 hours to infuse 54 grams (the highest rate is 100 ml/hr). After my IVIG infusion, I feel my legs get “heavy” and “weak”. Does anyone feel this? One of the side effects of IVIG is “asthenia” according to the IVIG prescribing information. My CIDP fluctuates. There are some days where I am feeling good with energy, and there are some days where I am so tired. Does this mean I need more IVIG?? This is a crazy disease, so unpredictable.