Reply To: is this the new normal?

May 2, 2012 at 5:55 am

csczag -I, too, have the axonal variant of GBS. Mine started in Feb 2011. Different than yours, mine lead to paralysis with ventilator support required and months in the hospital. At my most recent neuro appointment, my doctor said it could be 10 years before the numbness in my feet is improved. This was very depressing to hear. The only good news is that I have incredible functioning given the lack of response in my nerves (still). Recovery seems so slow, especially with so much damage to the axons, that it does seem like a new “normal”. I welcome changes to that normal but am becoming accustomed to existing pain, fatigue, numbness, and balance issues that come with this syndrome.