Reply To: Inquiry

Anonymous
July 10, 2012 at 6:10 pm

Hey Dawn Kevie’s Mom, I actually just started the anti-inflammatory diet so if you have any tips I would love to hear them! I still have to have an appointment with my neurologist for him to decide how often I am to get treatment, I’m assuming somewhere around once a week to once every two weeks for a little while until hopefully I can wean off of treatment altogether. I received 120 milligrams; 50mg. the first day and 40mg. the second and third days. I go to a decent sized division III state school just outside of Rochester NY. And thanks for that heads up about the immunizations, and if you want I could ask the nurses at the infusion clinic if they know if people who get IVIG receive the immunity to diseases that the donors have from prior immunizations.
I was actually lucky enough to be able to walk the whole time while I had CIDP, but the last 6 weeks or so I needed a cane (I still do for now) and more often than not a friends should to hold onto while we walked somewhere. My parents actually work at home and I have some really understanding friends so they have all helped me walk and what not these past few weeks when I was at my weakest. But within 5 days of treatment I was “caning” around faster than before, but outside of my house I still prefer to hold onto someone’s shoulder as well as using a cane.