Reply To: How many of us work?

November 14, 2013 at 2:11 pm

I was diagnosed with CIDP in 2011. I work full-time 10 hours a day. I do feel fatigued and feel some pain and tingling but not so much that I can’t make it through the day. I do notice my legs feel heavy when I have to walk any distance for running errands. But I mostly stay in the office and sit at a desk. Fatigue sets in at night but I can’t rest when I get home. I have a 10 year old daughter that requires my attention. So I am coping and trying to get along with CIPD and not slow too much. I was lucky that I was diagnosed within 5 months of my first symptoms and got IVIG started as soon as diagnosed. I think this has kept my symptoms more mild as I have not had a lot of permanent damage to my nerves. Fitting the infusions into my busy life is a drag though. I hate to give up a whole day every 21 days. Especially one of my precious days off. But I do what I have to do. Good luck to all who try and juggle work and this horrible disease. It is hard but I am blessed that I can still keep it up. I pray I continue to do so as my husband is unemployed and has been for over a year.