Reply To: Help-Considering Stem Cell Transplant

January 21, 2013 at 12:33 am

How long did it take for Northwestern to get back to you after you submitted your information Pat?  I got all of mine out on Dec 26th, am waiting to see if Im accepted.   Hoping to hear soon—i am doctorless at the moment and have not recieved any treatment for 7 months.

I can feel my self getting weaker, the numbness that was only in my feet has crept up close to my knees, my thighs and around my knees are feeling shaky and weak.  The ivig did keep me from getting worse, but because i didnt get an increase in strength from it, the dr i had doesnt  want to continue it.  Im getting in with a new dr soon that hopefully has more knowledge about cidp.

hoping to get in for the sct, and hoping my insurance company doesnt ruin it for me if i do get accepted.