Reply To: Hello, I'm new here and looking for a little help

March 3, 2013 at 6:37 am

I’ve been a little bit of a medical mystery for a while, which I think is why I’ve been given the “atypical” moniker.  But yes, I’ve had innumerous tests over the last year or so, because as more and more weird symptoms started popping up I began to worry more.  It’s hard to determine which results are meaningful and fit into a diagnosis.  I guess I’m mainly curious if people who have things in the CIDP spectrum have all these other wacky things or if they only have the hallmark results.  I’ve had a rheumatologist and 2 neurologists essentially say it’s “something” autoimmune and ivig will help.  I went through a Lyme disease course of treatment without any help.  We’re basically waiting on insurance, etc. before rolling with the ivig.

Are there dietary adjustments? Supplements? Leaky gut? Anything to do more or less of? I need to research this stuff but I figure people here would know more.  Any resources you can suggest?

Lastly, do my symptoms seem consistent with CIDP as you understand it?