Reply To: Heading (Hopefully) to Remission

This is wonderful. I know you are feeling good about the possibility of being able to stop your infusions.

I was told by the neurosurgeons I needed two major back surgeries but it was the wrong diagnosis. I happened to go to a neurologist for a consultation about the surgeries and it turned out I had CIDP.

I am in the process of trying to reduce my infusions. I’ve had 6 a month for 7 years and think it’s time to see again how I feel with less. When I was fighting my insurance company about IVIG coverage I went 5 weeks without one and did OK. Maybe it was a blessing in disguise? My concern is the profound nerve pain and exhaustion but I can always rive up my infusion schedule again if these two problems flare.

Keep us abreast of how you are.