Reply To: GBS/CIDP Survey Results

September 24, 2012 at 1:49 pm

Dear Drew,

Thank you so much for all the work you are doing. I would like to comment on the third part you have published. Excuse me for my poor English, it was twenty years ago when I graduated 😉

I allready had the assumption that people with CIDP have more problems with their hands than people with GBS. And you hear a lot of complaints like ‘my fingers are so bad, I can hardly use my computer’. Still you hardly find those symptoms in the statistics. I think this is some kind of ‘self selection’ (I really don’t know whether this is the right scientific expression).

When you suffer from problems with your fingers, you are not very likely to take part in surveys or to be an active member on the forum. I often do not take part in surveys myself, as I have to choose between, for instance, filling out a form or brushing my teeth. So I think a lot more people have ‘fingerissues’ than appears from your survey.

Still, very great survey, I just wrote this as ‘something to consider’.

Kind regards,