Reply To: GBS/CIDP Survey

April 6, 2012 at 8:11 am

I totally agree with kevin2010! It is exactly how/what was said to me and I thought – they really are being vague to the point of useless, why? (afraid of being sued?). I then was told there is loads of information out there (and there is) I spent weeks trawling the web and found so much, all of it contradictory and vague.

I seriously do not intend/want to be negative about the medical profession as they do a great job, but to say this series of diseases has been nailed and all that is needed is available is untrue.