Reply To: GBS/CIDP Survey

“Drew,
I just finished your survey. I wish you luck in getting different orginizations interested in your data. I did a simple survey about 5 years ago and was blown off by all of them except the Mayo Clinic. I was told that surveys without hard medical evidence (meaning actual medical record data) are not accepted.

Best regards.
Jethro”
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Wonderful. Here we have an illness that is diagnosed almost entirely by observation of symptoms, except the patient’s observations don’t count.