Reply To: GBS/CIDP Survey
April 4, 2012 at 11:34 am
I just finished your survey. I wish you luck in getting different orginizations interested in your data. I did a simple survey about 5 years ago and was blown off by all of them except the Mayo Clinic. I was told that surveys without hard medical evidence (meaning actual medical record data) are not accepted.
Wonderful. Here we have an illness that is diagnosed almost entirely by observation of symptoms, except the patient’s observations don’t count.