Reply To: GBS pain

Anonymous
July 7, 2012 at 5:43 pm

Seems like when I am more active or if I have been to pt and ot I am in more pain. Nikki, why did you discontinue pt and ot? therapists seem to think I,ll be there for a year Even though i don,t sleep during the day I am in bed most of the day…no energy or motivation to do anything. I also wonder if I have GBS or CIDP….I LIVE IN A SMALL town and drs. don,t seem to really know what to do for me…so i read as much as possible on internet…thanks for listening.